Almost Done…

Hi All,

Do the words in the title of tonight’s blog make you feel anything? Maybe anxious? Or excited? How about sad? These two words bring a lot of feeling to the forefront of my mind, and right now, the most obvious feeling is scared. I am scared. My husband is hanging on, but I know his life is almost done. At least here on this earth. My husband is a believer, as am I, but we don’t believe the same way all the time. It’s okay. We both believe that his healing will happen in the afterlife. We both believe that the journey towards the afterlife will be worth all the suffering. He believes, and so do I, that once he passes away, his spirit will never leave mine. His body is a vessel, as is mine, but the spiritual connection is something beyond the physical. I am scared to have to say goodbye for good to the physical presence of my beloved, but I know I don’t have to say goodbye to the spirit of the man I have loved all my life.

Almost done… with my seasonal job at UPS as a PVD (private vehicle driver) and I think I’ll miss it more than I care to admit. I’ve met some cool people, gotten to know a few neighborhoods outside the city and proven to myself that this almost 60 year old can keep up! The job has helped me get through the holiday season without my husband. It’s been 56 days today since I’ve been allowed to see him. The pay is healthy for a temp job, and I’ve managed to save quite a bit. I am saving for the future, I have to. Soon I will be completely alone, carrying the burden of finances on my own. I’m ready. I want to look forward without fear, and look back with gratitude. I don’t know where I’ll end up, or when, but I’ll keep making sure I am as ready as possible.

Almost done… I’m trying to figure out a time frame for selling my Ford Escape. It’s time to let it go and put that money towards the future as well. I plan on selling it in February or March, and I’ll be ready to lessen my auto insurance as well. Living in one of the highest cost cities for car insurance is so not a bonus when it comes to cost, but taking that car off my bill will certainly ease the pain in my wallet. I’m looking forward to being almost done in this specific regard! Boston is very expensive, people drive like maniacs, and more times than not, you can tell drivers have a hurry up and get in front of someone attitude. I let them. It’s not worth the crash. Or cash.

I’m wishing I could find a way to be almost done with the amount of times I put my heart at risk by trusting people with it. I’m learning, but damn, at 58 you’d think I’d have a little more sense as to who is and isn’t trustworthy. I’ve always said that the lessons that we learn the hardest are the ones we learn the best, but for some reason, this is a lesson I just can’t seem to learn fully. I’m raw, and broken, and hurting for others, but in that hurt, I opened the door to being hurt without realizing it. Again. Please, let me be almost done with putting myself out there to be stomped on, ridiculed and treated like I am less than. Enough. I am also strong willed, determined and sassy. Time to let those traits shine for a while.

We had been without internet here at the house since Saturday past, and just got it back today. It’s been kind of nice, in a way, but also not so nice. I depend on my Chromebook and it’s connection to the internet to write my blog, and not being able to when I wanted was annoying. It’s back up now, Alexa is responsive once again, and I can write, listen to music, play games, pay bills (ick) and do whatever else we humans do with the internet. I have been trying to adopt a more minimalist lifestyle for a few months, and following a page on Facebook called Becoming Minimalist. I found during our internet loss I really missed it. I don’t have a lot of material things, everything my husband and I own fits in my room at home and a small storage unit. Being minimal appeals to my planning nature, and it sure makes cleaning and organizing easier. Whenever I finally get to move the things out of storage, I may have to purge again. One of my favorite things to do…

In closing, I’d like to thank you for taking the time to read this entry. The world may crashing all around us, but we can try and find a little light at the end of each day. I am concerned that the country I love may be almost done, and I pray for peace. The human race is the only thing that can save the human race, but we’re not doing a very good job of saving ourselves right now. Love should always win. I’m not almost done with hatred, I AM DONE with hatred. Hating your neighbors because of their politics, or skin color, or even their sexual orientation is exhausting. Pick up and put on the mantle of peace. Walk away from the frenzy and take the time to feel the sun on your face. Help your elderly neighbor with whatever they need. Pay it forward. Smile. And, as always, remember to be kind to one another. Kindness is free, and will do your heart good.

Until next time…

Photo by Simon Migaj on Pexels.com

The Unexpected…

Hi All,

Today started off like any other day has as of late. I got up at 6:30, wandered on in to the kitchen, made my coffee and emptied the dishwasher. Started laundry. Ate cereal with a banana. Tried to solve a daily word puzzle. Headed upstairs and took a shower. All very routine and almost taken for granted. Almost…

The first unexpected thing happened when I was in the shower. I always listen to The Message on Sirius/XM while in the shower and my phone sits on the little stool by the radiator. I knew someone had texted me when I was in the shower by the loss of volume in the music. It irritated me. Three times it irritated me before I was done. Seems excessive, doesn’t it? To get irritated by something I couldn’t control… When I finally got out of the shower and looked at the phone, it was my work that texted me to tell me there was no work for PVD’s with UPS today. Not a big deal, but the first hiccup of the days plan. After drying my hair and brushing my teeth, I came downstairs and got dressed in comfy sweats and my favorite Jim Brickman hoodie. Warm socks completed my ensemble. Not a fashionista by any stretch of anyone’s imagination. Actually, I never am and I’m so okay with that. The older I get the more I realize that I am exactly who I need to be. For me. For my family. And for my friends. Being more is not necessary.

After getting dressed I talked with one of my friend’s for a while and then wandered into the quiet living room to watch Breaking Dawn parts 1 and 2, but didn’t. Another unexpected opportunity presented itself. I switched gears from Vampires, to God. Yes, that God. I watched the movie about Jeremy and Melissa Camp and Jeremy’s song “I Still Believe.” The beginning of the film was easy, but not 30 minutes in, it became very painful to watch. What wasn’t painful? As I watched I began to realize that I have been so stuck inside my own pain that my prayers have become almost remote. Push a button, pray. Blink your eyes, pray. Walk down memory lane, pray. I could feel the pain that both Jeremy and Melissa experienced because of the circumstances of their life, but more than that, I was encouraged by the strength of faith possessed by them. I was reminded in a most personal and powerful way that the struggles and pain I face every day are insurmountable when facing them in the human sense. I am not alone. I know this and I’ve said it many times throughout the past 14+ months. My heartbreak is real, raw and seems to never end. My faith can be weak, scattered and seem not enough, but it is. I am loved.

The movie touched me deep inside, and knowing the story of Jeremy and Melissa Camp going into watching the movie didn’t make it any easier to come to terms with what is happening in my life. Or in the life of my husband. The movie affected me in an unexpected way. The movie brought me introspection. I’ve been thinking since the movie ended about how I can pray differently for my husband. How I can pray in a more meaningful, authentic way. I wish the movie could’ve brought me relief from the never ending streams of tears that seem to seep from my eyes all the time. Today it’s been 48 days since I’ve seen him in person and I think this forced period of isolation is much harder on me than I have been willing to admit. The movie made me see this. No matter how old or young we are, when the person that we love the most is suffering, we suffer, too. I have been trying to “manage” my pain, but it’s been managing me. I have no idea how much longer my husband has here, or if I’ll ever see him again, but I still believe…

I never expected to be where I am at this point in my life. I thought that we would be living in our little 1970’s ranch home in the rural Berkeley county area of SC. I thought we would playing with our grandchildren, having meals as a family unit with their parents. I thought we would be going to church together and raising our hands, and hearts, the the Lord in thanks. I still thank Him, but it doesn’t always make sense to me. I’m human, and selfish, and hurting. I want to hug my husband, I want to see my daughter, I want to have a margarita with my friends. I want… but can’t have. This season of pain and uncertainty has given me pause to examine my life in a very critical and almost too harsh way. Almost being the key word. What’s unexpected about that? The examination has brought me to a place of understanding and surrender. Both extremely difficult things to accept. I understand that my husband had a stroke and that he lived a hard life by choice. I don’t understand the amount of suffering and pain he’s living in right now. I know I never will. So I say welcome, to surrender. I have to surrender him and his pain to a higher power. I have to surrender my heartache and my tears to the God I believe in. I have to believe that the greater plan in all of this will be healing, just not in the sense of earthly healing. I have to believe that there will be unexpected gifts of love, compassion and peace somewhere down the proverbial road. If I lose my belief in what is coming, I may as well just give up. Not. Gonna. Happen.

I am no theologian. I am not, by any means, an expert in prayer, surrender or the ways of God. I do not claim to have any answers, never mind all the answers. What I can tell you… God, as I know Him, loves me. Me. The kid who was abused as a child, the teenager that was defiant, the woman that was treated with disdain and hatred by her own flesh and blood. I am still loved. Me. He loves me. He knows my name and I am worthy of His love. Because God loves me I know I will make it through this and whatever unexpected things happen in the future. As a child I believed the way I was taught, now I believe in the way that has brought me home, much like the Prodigal son in the Bible. I know that there are people out there that believe I am still not a “true” believer, but I don’t worry about all that. My relationship with God is mine, not theirs, and I don’t need their approval. Nor do I need their permission to believe the way I do. God loves me. Me. That has to enough… And it is…

If you need to be prayed for, please reach out to me. We are not meant to do life alone and I would be honored to add you and your prayer needs to my prayer journal. If you don’t believe in God, that’s okay, you still might want to connect with someone in this vast and lonely world. You’re not alone. Whatever unexpected things you’re facing, you are NOT alone…

Still here… And Still Hurting…

Hi All,

I’m still here and still hurting, but am managing to still look towards a brighter day. It takes so much effort that there are days I simply want to give up, but being as determined as I am to be okay again makes giving up impossible.

My beloved husband is still alive, and alone. Again. I haven’t been allowed to see him since November 18th and the days drag on. Imagine if you can; having a brain that doesn’t work the way it should, not being able to use sound reasoning, and being afraid. All of this and more is how my husband lives. He’s well taken care of by the staff at the Hospice Unit he’s in, but mentally he’s tortured by his own brain. The stroke took away his ability to understand things, it took away his reasoning skills and it made him fearful, childlike and distrusting. To know he lies in a bed 24/7 with no one that loves him like his family does nearby breaks my heart. Every single second that makes up every minute that makes every hour that makes every day, I think of him. Every. Damn. Second… And I’m not the only one. He has a large family and friends around the world praying for him, but because of his injured brain, he can’t comprehend this. It’s not living.

I had hoped to be allowed back into the hospice unit by now to at least visit for 2 hours a day as I was before the current Covid surges, but there is no end in sight to this present ban. I’ve begged with his doctors, and the Veteran’s Administration to explain how I am more of threat to him, or the other patients on his unit, than all the staff members that come in and out on a daily basis and the answer is always the same… “It’s a national mandate.” Well, your national mandate is killing all of your patients via loneliness, and it’s cruel. And nonsensical. And don’t even let me get started on people denying the virus or not wearing masks. Public health is a public responsibility and as a public, we’ve failed. Because people don’t care enough about others, I cannot visit my dying husband. My feelings about irresponsibility would make for another post, but suffice it to say that I no longer feel confident I will see my husband alive again. In fact, if he should pass soon, I would be grateful on one hand, shattered on the other. No one should have to be alone because of all the naysayers and irresponsible choices other people make. No one.

I’ve been working for UPS as a seasonal PVD (private vehicle driver) and have 10 days left until I am no longer employed. I took the job as a way to pass time and not sit home alone and all up in my own head. That’s a scary place to be sometimes. The job is physically demanding on this almost 60 year old, but I’m determined to finish. I almost quit when my BFF advised me to stick it out for earnest money on a new home somewhere down the road. She was right. Every box, bag and tube I deliver is another front door closer to my own again. It’s been hard, but I committed to it and I will see it through to the end. Over the past 14+ months since the stroke changed our lives, I have come to realize that nothing is easy, and that easy is overrated. Working hard has its own rewards and I see exactly where I want to go with what I’ve earned. Patience… Something else I’ve been forced to learn that doesn’t come easy. Ever. Someday when I look back on what we’ve been through since that fateful day in October of 2019, I’m sure I’ll see one set of footprints in the sand, and know that God, my family and my friends carried me, and my husband through the most difficult journey ever. Easy, like I said, is overrated.

The beginning of a New Year usually comes with the hope of something “better.” I’m not looking for better, nor do I expect it. I’m looking for the peace that seems to elude each and every one of us from time to time. I know it’s out there, I’ve experienced it, and I am hopeful that I will again. I don’t make resolutions, I believe they set us up for failure. I set goals, and make a map for myself on how to make it from point A to point B to point C. You get the picture. In 2021 I pray I remain as strong as possible for the dark days that lie ahead. I pray I will feel the warm, southern sun shine on me again. I pray that my husband is granted mercy, peace and healing. I know that with those things I am facing more heartache, but joy comes in the morning, right? I know he wants me to be happy, and I am determined to honor him by finding happiness again. One breath, one step, and one day at a time.

In closing I would like to wish whoever reads this a Happy New Year. May you find happiness along the journey of your life and may you share and experience kindness. We all deserve that…

Photo by Barb Enos

Seven…

Three years ago, in 2017, I was driving the 1000 miles from Boston to Asheville. After a very painful, 7 week spilt from my husband, we comitted to try and put our marriage back together. We. As in two.

I left because I thought if I could just make my husband see how mean he was, maybe he could find a way out of the misery he was in. Without me. By the third day of separation, I started to realize that I was so verbally abused, and abusive, that changes had to happen for both of us. As individuals and as a couple.

I hurt so many people when I left, and some of them will probably never truly forgive me. It’s okay. My husband forgave me. I’ve forgiven myself. After three years time, I no longer seek, nor need forgiveness from those who won’t give it. My husband forgave me, our families forgave me, and most importantly, God forgives me.

Six months after returning to Asheville, our lives were upended again. We were vilified as parents, thrown away, and forbidden to see our oldest grandson. I’ve often wondered if the reasons given for the estrangement weren’t made up, and was the estrangement a form of retaliation? Retaliation for the pain I caused when I left my husband? The reasons for us being thrown away don’t matter anymore, we were able to stand against the pain together. My husband held my hand, I held his. My husband let me cry in his arms, he cried in mine. We stood up for one another, determined to keep moving forward.

Seven weeks later, (seems there might be a commonality going on) I spent a weekend in Charleston, SC, loving on, and being loved by, the daughter and grandkids we were allowed to love. That trip was the application of stitches that started to sew back together my shattered heart. When I got home, my husband was gazing into the backyard and didn’t know I was there. When he realized I was standing behind him, he turned to me and said “I think we should sell the house.” I asked why before considering what he’d said, and he answered with “my Poppy heart is lonely and I want to love our grandkids.” I said yes to selling without hesitation.

After the decision was made, we spent the next seven weeks getting ready to list the house. Cleaning, purging, updating smaller things like doorknobs, hinges, painting, and replaced the roof. Busy times. Very busy times.

We listed our house on August 3rd, had a full price offer within 24 hours and closed on August 30th. We packed up a large POD, a storage unit, and headed north, to Boston. Again… Just for a visit, though. I had found a smaller house on a quick weekend trip back to Charleston, but our close on that property wasn’t until Sept. 28th. We took our time driving to New England, stopping often to enjoy the beauty of the Shenandoah Valley, the Pocono Mountains, and the changing colors of fall in New England.

We had been in New Hampshire about 7 days when my beloved mother-in-love tripped over a threshold and fell. She broke her femur and I am so glad my husband and I were there when it happened. I called 911 and by the time my husband came down to the garage, we could hear the sirens. Off she went to Manchester, later to have surgery and go to rehab. She did well and went home after we left.

I write all this to let you all know that life happens. Sometimes we determine our own course, at other times we are pushed along the road of life, even if we don’t want to make the drive. Since moving into what should have been our last home, we have sold that home, purged again, driven thousands of miles and settled in New England. My husband’s stroke in October of 2019 has been the determining factor in all decisions made since, and we are both exhausted by life now. Yet it seems there is more to do…

Not being able to see my husband in hospice is slowly killing me, and he is incredibly lonely. How could he not be? I’ve been trying to make sense of the non-visitation rules, but I can’t. I’ve been trying to keep myself from falling apart, I fail. What I can do is remember that my husband and I rebuilt the foundation of our marriage on the Rock that is Christ, we put ourselves and our marriage first in a non selfish way and that we choose love.

This part of my life hurts. There are no words out there to describe how hard it is to watch your spouse die. Now I can’t even do that. I call every day to check on him, but not being able to hold his hand, kiss his face or just sit quietly with him is beyond comprehension. He’s dying. Alone. Physically. My husband never walked away from his faith like I did, and the promises we depend on to keep us strong are just that… strong promises. We share an unbreakable bond, and that bond is what will keep me going after he’s gone.

Darkness comes. Often. More often than I would like. I spend my days praying for the man I love more than my own life. I pray that the peace and rest he so richly deserves finds him. And finds him soon. I pray that I will be strong enough to let myself fall apart and just be. I pray that the broken hearts that have already shattered because of my husband’s stroke be healed with love, and time, and grace.

Thank you for reading this, and please know that there is a day, somewhere down the road, that light will shine upon you again. On me. On my family. And friends. The storms don’t last forever… right? They just feel like they do…

Photo by Barb Enos

A Little Heavy…

I don’t normally share about my faith. Today I was reminded why that is, and why I am so guarded.

Shattering hurt comes to all of us, and being able to admit that is one thing, sharing it publicly? A completely different experience altogether. I fully admit that I have hurt people, both with intent and without. Seeking forgiveness for my actions seems elementary, but it’s not. Forgiveness of self is never easy, but it is possible. Asking others to forgive me isn’t easy, but then again, nothing worth having should come easy. I want to be able to appreciate someone else’s forgiveness, not take it for granted.

I started a five day study today on forgiving what we can’t forget, and I see so much of my brokenness in the first day of reading, I don’t think I want to keep going. I will. I know the best things in my life have always been born out of great anguish and tremendous struggle.

Whether you believe in God or not doesn’t mean you can’t forgive. Forgiveness is a human moral, not a religious one. Did your husband cheat on you? Did your adult child throw you away? Did someone steal something from you? No matter the wrong committed, you can find the strength to forgive. Forgiveness of others and of self make the weight of being broken a little lighter. At least for me.

Today is day 7 of not being able to see my husband and the first day I didn’t wake up crying. I know I’ll cry somewhere along the way today, but I’m thankful my eyes stayed dry this morning. Not seeing him makes me angry. And sad. And confused. All things that I need to forgive. Daily.

I’ve been told many times over that I’m “too” forgiving, and all that statement says to me is that the person(s) making it are hurting so much, they’re blind to their own pain. I never want to be so blind to my hurt that I can’t, or won’t, learn from it. Life lessons are just that… life lessons. I may not have been the best student in school, but I fully intend to learn the lessons this life teaches me.

I’m very thankful for all of the support shown to my husband and me throughout this most difficult journey and want you all to know that. I know I draw into myself. A lot. Sometimes the pain shatters me so much, I can’t see past it. Sometimes the pain is so hot, I feel like I am dying in the fires of hell. It’s after the burning I find that I am being forged like iron, the forging gets me ready for the next round of pain.

If you’ve read this far, thank you. I know this post is a little long. It’s more personal than most, but my heart cries out to share this journey from time to time. Today seemed a good day to share. I am still hurting more than ever, but I see a bit of light through the cracks in my heart today and I can only hope that my words encourage someone else to forgive that which can’t be forgotten…

(I do not own this meme)

Affliction

I’ve spent the morning talking (via text) to a friend in Mumbai, cleaning out the dishtowel/pot holder drawer, the tea cabinet and did laundry. I made my bed and swept the kitchen floor. At this time of day, since September 14th, I’ve been at hospice, holding my husband’s hand, singing to him, telling him I love him. Now all of that is gone again and I have to find a “new” routine to be able to make it through however long this lock-down lasts.


I normally can find solid reasons why things happen, and if not, I can at least try to make minimal sense of a situation. Last lock-down, I had Morgan (my dog) to focus on. He was my reason to get out of bed and try to have a life. Morgan died in July… I miss my dog so damned much, and I know he is better off. I am not.


I miss my husband and there seems to be no one that can tell me how I am more of a threat to him than the people that work at hospice. Minimizing traffic in and out of the buildings is the only answer I got yesterday after seeking out someone to answer my questions. I get the thought behind that, but damn, the patients in hospice are already at the end of their lives. Our people are dying alone, again. I wear a mask, I limit my socializing, I try and stay safe and be cautious. It seems beyond cruel to eradicate the human touch of love. I know he’s well taken care of by the staff, but they don’t know him like I do. I need his touch as much as he needs mine, maybe even more. None of that seems to matter…


I can’t just unlove him. I can’t see past my shattered heart. I can’t unthink about him, or unfeel his touch. The extended length of time since his stroke has changed me forever and some of those changes I don’t like. Some I do. I am less trusting. I have zero tolerance for other people’s opinions about my decisions. I have walls built around me that only very few people are allowed to peek over.
When I cry, which is at least 90% of the time right now, it’s ugly crying. That I’ve been through three boxes of tissue since Wednesday afternoon should tell you something. I had a peaceful day with my beloved sister-in-love yesterday and she knows all too well what pain can do to the spirit. I cried a lot with her yesterday, and she understands. I understand her. Thank you, A.E….


When life knocks you down, sometimes it’s just too damn hard to get up right away. Sometimes the only way to get up is to let your feelings be, and accept the refining of the silver in your life. “Behold, I have refined thee, but not with silver; I have chosen thee in the furnace of affliction.” Isaiah 48:10. The furnace of affliction… whether a believer, an atheist, a christian, a person without faith tenets, we all face affliction. Sometimes the white hot heat of life is the furnace of affliction. Sometimes we open the door to the heat without even knowing it. Sometimes the heat comes from a back draft. The furnace of affliction with its overwhelming heat is a brutal place to be, but it’s not as scary as we think it is. I am hopeful that as the fires of affliction burn all around and through me, I am able to stand. And survive.

I’m not strong, I’m broken. I’m not happy, I’m sad. I’m not sharing light, I’m stuck in darkness. I know this may seem sad to those of you who see me as encouraging, it is sad. I feel tremendous guilt at not being there for my husband, though it is in NO way my fault. The guilt comes on like a tsunami, crashing over me. Again and again. The force of the guilt is like the water, relentless. Ebb and flow. Crashing, receding and crashing again. Guilt is not what I should feel, this I fully realize. Guilt sucks. I am not the only person who is being kept away from a loved one that’s dying, and I can almost guarantee you, others feel like I do. Many, many others.

Someday, Coronavirus will either burn itself out, or become a world-wide, common virus like the Chickenpox or the common cold. As long as people deny the science behind how to minimize it, I will be in this position. Broken. Being denied the touch of my husband’s hand. Sad. I’ve said it before, public health is a public responsibility, so please, be responsible. PLEASE!!! We, as humans, are not created to be alone, to be divided. We should be able to depend on one another in our times of greatest sorrow, and it’s very sad that we can’t. It’s very personal to me now, knowing that people say they care and then demonstrating just how little they actually do. Wear a mask, stop bitching about it! It’s part of being responsible. It’s simple, too. Not complicated at all. Try it, please…

In closing, I’m going to try and get out of the house this afternoon and maybe I’ll find a smile or two. I need to feel the sun on my face, listen to the birds and know that the darkness I am encompassed by is temporary. Even though it doesn’t seem so…

Be kind, stay safe and know that I appreciate you all!

Photo by Barb Enos.

Getting Lost is Too Easy…

Hi all. I hope this entry finds you all well and staying safe. With the holidays right around the corner and the virus raging out of control, I know times seem dark. They are dark. And it’s easy getting lost in the darkness. At least for me it is…

My husband is still hanging on to life, but declining steadily at the same time. It’s been almost two months since he went to hospice care and I feel like it’s been so much longer. So. Much. Longer. I am lost in the depths of a sinking sadness and it just doesn’t end. There is no way to say this. It just is. I pray constantly for his pain and suffering to end, knowing that mine will be made greater when he passes. It’s okay. I know I will heal as best I can and I hope to get lost in the healing process. I hope that makes sense… I am so lost in the grieving process already, and have been for over a year now, so the healing process will be a welcomed change.

Today my husband asked me not to cry, but I don’t know how to stop. It’s so easy to get lost in the sorrow of the journey we’re on. Finding reasons to be happy still come, just not as frequently as they are welcome. I did have a reason to be happy for a little while today when talking to the other Gma of our oldest grandson… He got a new puppy on Monday of this week and our boy named him Moe. I learned that our grandson has shown great responsibility in caring for Moe already, and that Moe brings healing to his heart. This is the same grandson we lost to the forced estrangement more than 2.5 years ago, so knowing that he is happy means everything to me. I am so grateful for the small things in my life that bring me moments of happiness.

Being lost in the love of my family is easy, and I appreciate them so much. I am so wounded and not fun to be around, and the people of my family are loving me through the pain and the loss to come. I won’t be the only one to lose my husband, and I know that all of us will be left a little emptier after he’s gone. I think sometimes I hurt so much that I close myself off, and they know this. So do my trusted friends. I’d like to believe that the people I love aren’t hurting, but they are and I can’t fix that. I wish I could…

Getting lost to the sadness is one thing, getting lost in the anger that rears its ugly head is another. I have been angry a lot over the past 13 months, but lately that anger seems to sink its teeth deeper and deeper into my soul. I don’t care if people agree me when it comes to the decisions I’ve been making. What other people think of me is none of my business. The climate in which we all live in the U.S. is toxic. It’s also emboldened people to give voice to their opinions about MY decisions. If I want to know what someone thinks about what I’m doing, I’ll ask. The saying about walking a mile in someone else’s shoes… Yeah. I get lost in that anger and I can’t shake it off as easily as I used to. I know I shouldn’t care, and most of the time I don’t, but when closer then most people to me say shit to me about what they “would do differently” I get pissed. When it’s your turn to do things differently, go ahead. I sincerely hope you never have to do things differently… I hope you never have to sit by a loved one’s bedside and watch as the Grim Reaper slowly takes his sweet time torturing them.

I wish I could be more positive and encourage you all like I used to. I hope to get back to that person again someday. I know I’ll never be the same again, but I also know that I will be okay and that my story will be an encouragement to someone else someday. When people tell me how strong I am, I tell them that I’m not strong, I’m broken. Being broken is okay, and so is being strong. I’m not strong enough to be anything but broken right now and it’s as it should be. I am not afraid to ask for help, I am not afraid to cry and I am not afraid of what is coming. There is a strange sense of strength in the brokenness I feel, and someday I will try my best to put the pieces back together again. Until then, I’ll try really hard to not get lost in the pain…

Stay safe, be kind and know that I appreciate you all making this journey with me. Until next time…

First snow of 2020. Photo by Barb Enos

It’s been a while…

It’s been a while since I’ve written, and that extends across all the ways I write. My journal, my blog, letters, my book. I have been so caught up in surviving the visits to hospice every day that I haven’t taken much time for myself lately. I did, however, take time today to walk the Cape Cod Canal this afternoon after visiting with my husband, and it was well worth the drive. I’d almost forgotten about the beauty my home state offers, even with the winter approaching…

It’s been a while since I’ve felt good, both mentally and physically. I’d gotten used to walking the campus of the VA Hospital where my husband is every day after our visit, and then that freak snow storm hit the area on October 30th. A dusting was predicted. We got 6 inches here in the greater Boston area! I drove in the snow for the first time in many years and did fine. Just kept it slow. I also drove to NH to spend the weekend with family and it was nice. Even nicer? I didn’t have to drive to and from hospice for two days as my brother-in-love did all the driving. Such a relief…

It’s been a while since I’ve felt whole. A long while. We passed the one year mark for my husband’s stroke on October 30th. He had his craniotomy on Nov. 2, 2019 and it’s been more than a year since he looked like someone beat the crap out of him the day after the surgery. In the long year since he had fought so hard to recover and he did so well. Until Covid came. The forced isolation took its toll on him physically, mentally and emotionally. Spiritually he has become stronger, and the closer he gets to death, the stronger his faith becomes. I wish I could say the same. I’m broken, not strong, and when I tell people that, they’re usually surprised.

Have you ever watched someone you love more than your own life die a long, slow, agonizing death? I hope not, but if you have, than you know what I feel like. I feel like this: When our daughter estranged herself from the family and forbid us to see our grandson, I was shattered, As time went on, I began to pick up the larger pieces of my life and tried to put them back together. Light would shine through the cracks and while the light refraction’s looked different, there was still beauty. Then came the stroke, 18 months later. I was shattered into smaller pieces, and again learned to put the small pieces back together. Light again shone through the smaller pieces and larger cracks. Then came selling our home. Moving. Being banned from visiting my husband. Discharging and moving. Again. Still no visitation. Almost seven months without being allowed to touch my husband, hug him or even hold his hand. In that 7 months, the pieces of glass kept breaking. They turned to dust. Dust that cannot be put back together again. My spirit became dust. Glass dust is beautiful in its own right, but it’s impossible to keep together. I also feel like a jigsaw puzzle. Every day that I get to see my husband, for two hours, I feel like I leave another piece of the puzzle behind me when I have to leave him. I don’t even bother to look for the missing pieces. I will. Later. I AM determined to be okay. I am determined to face the storms I’m in with every broken piece of me. And, when I get to the other side of the storm on the horizon, when I get my feet under me and my mind clears from the fog of grieving, I will begin to look for the lost pieces of myself. It’s the getting from here to there that is taking a while…

I do want you all to know that I’ll continue to try to do some self-care, hence the walking of the canal today. I dream of the day I can travel to SC to see my beloved daughter and her family. I miss my grands so very much. I dream of going to Northern California to visit family and heal. I long to walk the beaches of Northeastern Florida and spend time with family there. I know that these desires will have to wait until it’s safe to travel again, but these are some of the things I will do when I can. Until then I will see my husband every time I am able and try to remember to be grateful for the time we have. He is declining every day and I pray for him to find relief from the terrible pain he lives with 24/7/365 now. He is heavily medicated for pain and anxiety, but the pain always seems to find a way to break through the morphine and fentanyl.

In closing, please remember to be kind to one another and try not to take your life for granted. Hug someone you love, pay it forward and smile. The trials of this life may seem insurmountable, but with support and love, we can all find moments of joy. Until next time, I am always thankful for you…

Cape Cod Canal Photo by Barb Enos

When I…

Hello all, I hope that this post finds you all well and staying safe. Thanks for checking out today’s post!

When I think about what is happening in my life and the lives of those I love, I frequently become overwhelmed. Writing helps me make sense out of things that seem nonsensical. Most days during this particular time frame are pretty much nonsensical to me, and I literally end up overthinking every thing. It’s been a tough weekend for me, as are most weekends right now, and I would give almost anything to be able to change things. I’d change things not only for myself, but for the people I love that are dealing with losses and trials of their own. While driving home from visiting my husband in hospice today I realized, for the umpteenth time, just how much being an empathetic person takes out of me. Today, for an hour or two, I would’ve traded myself in for a model that couldn’t feel as much. I’m over that now, but those feelings gave way to so much more than myself. It gets exhausting carrying the weight of so much emotion, and if people like me aren’t careful, we lose ourselves to everyone and everything around us.

When I think about this last week I have to say that it was by far one of the hardest of my life. I never thought that saying goodbye to my son-in-love at the airport would open up the flood gates to so much emotion. I spent the week barely existing, barely functioning. I feel a little better today, but the bruises on my heart will take some time to heal. My heart remains broken, but my mind is a little less chaotic than it was 7 days ago. My youngest daughter and her extended family received some devastating news that set all of us reeling in disbelief and grief. I have spent the last few days praying for peace and healing, for comfort. Healing in this situation will be a very long time in coming, and the acceptance of such news as was received will not happen overnight. So much pain…

When I think about the loss I am facing with my husband, I am so conflicted. So very conflicted. I love the man I have been married to for the past 38+ years with my whole being, yet I am agonized by watching him suffer so. The transition to death is not anything like I think it should be, it’s a very personal and trying journey. The ups and downs of the hospice journey have been confusing, I get angry, I hurt beyond belief, and yet when I don’t receive that dreaded phone call, I am grateful. And I am sad for my husband. My suffering pales in comparison to his, there is no way I can put into words how much watching him writhe in pain hurts me. For him. If I could take it all onto myself, I would. Every damn day. The miracle in all of this will be his freedom from pain, no matter what that freedom looks like.

When I think about the future and what it looks like, I would rather run backwards than look forward. I know I have no choice but to look ahead, as we all know we can’t change the past. Looking forward right now is scary, I know the future holds days of unimaginable grief, struggle and pain. Beyond those things is where I need to focus. Beyond the grief will be healing. Beyond the struggle will be an easing. And beyond the pain will be a new journey that I pray will be honoring to my husband, challenging enough to keep me learning and a new found strength. I already know that I will not be traveling alone, I am surrounded by love.

As always, I appreciate any and all who read this and hope that you find something worth holding on to in my words. You are not alone in your struggles, you matter, and you are loved. Stay safe, be kind and remember to turn your face toward the sun and appreciate its light. And warmth…

Photo by Barb Enos

And so…

Hi again,

And so… I’ve been stuck in a never ending cycle of grief and angst on so many levels that I don’t know how to breathe anymore without struggle. Every day is a new challenge in living, and though I rise to the challenge, I’ll be honest and tell you that I would rather not keep on rising. I am broken. I told my therapist today that I’ve been shattered so many times there are no pieces left. All that’s left of me is dust, and dust doesn’t shine. Dust is easy to overlook. Dust is easily scattered. I want to shine again. I want to feel pieced back together. All I feel is shattered.

And so… I try every day to be realistic, and all I find is that the reality is too painful. I manage, and I think that old say “fake it til you make it” is the way I’m making it through each day. My husband is in hospice and he seems to be rallying at this time. He has spent the last two weeks without eating and barely drank water. The end was on his doorstep. I’ve made peace with his impending death (more than once,) knowing that I would again be crushed, but believed at some point I would be able to heal. Now he’s beginning to eat again, and he’s still dying. The ups and downs of this ride called hospice are so much more intense than I thought they would be. It’s like the Grim Reaper is stalking him… and then backs off. Over and over and over again. How many times can my heart be told he’s on the edge? No matter how “prepared” I am, or even think I am, it’s never enough… I have nothing left inside me but hurt, despair and confusion.

And so… I spend a lot of time up in my own head and need an escape. But, no matter where I go, there I am. I am teetering on the edge of depression and I’m stuck. If I jump in, I know I will have to dig a long time to get out. I’ve been there. I don’t want to go back. I fight like hell, but fighting an invisible force, without strength, doesn’t go well. I can’t let myself go, I have to stay strong for my husband. For myself. I have to fight…

And so… I know that the sun will come up again, it always does. I know that no matter what happens, or when, I am loved. I am supported. I am not alone. I need to stop “shoulding” myself. I “should” be happy he’s rallying. I “should” be grateful for more time. I “should” not beat myself up for being so confused. Or angry. Or sad… What I “should” do and what I actually do are not companions. Not even close.

And so… I realize this post probably makes little sense, but it’s gotta be okay. Making no sense right now is how I roll and it’s how life comes at me. Suffering the stages of grief “should” be easier right now. I’ve been grieving the loss of my husband for almost a year now, but the loss to come is at once unfathomable and impossible to imagine. WTF? Walking out this chapter in my life is more of a crawl. Moving forward has lost its momentum. I’m out of steam…

And so… I am going to bed. I’m gonna put my pajamas on, brush my teeth and pray that sleep comes peacefully upon me. Thank you for sticking with me, I appreciate it so much.

Stay safe, be kind and remember to smile when you can…

Photo by Barb Enos