Seven…

Three years ago, in 2017, I was driving the 1000 miles from Boston to Asheville. After a very painful, 7 week spilt from my husband, we comitted to try and put our marriage back together. We. As in two.

I left because I thought if I could just make my husband see how mean he was, maybe he could find a way out of the misery he was in. Without me. By the third day of separation, I started to realize that I was so verbally abused, and abusive, that changes had to happen for both of us. As individuals and as a couple.

I hurt so many people when I left, and some of them will probably never truly forgive me. It’s okay. My husband forgave me. I’ve forgiven myself. After three years time, I no longer seek, nor need forgiveness from those who won’t give it. My husband forgave me, our families forgave me, and most importantly, God forgives me.

Six months after returning to Asheville, our lives were upended again. We were vilified as parents, thrown away, and forbidden to see our oldest grandson. I’ve often wondered if the reasons given for the estrangement weren’t made up, and was the estrangement a form of retaliation? Retaliation for the pain I caused when I left my husband? The reasons for us being thrown away don’t matter anymore, we were able to stand against the pain together. My husband held my hand, I held his. My husband let me cry in his arms, he cried in mine. We stood up for one another, determined to keep moving forward.

Seven weeks later, (seems there might be a commonality going on) I spent a weekend in Charleston, SC, loving on, and being loved by, the daughter and grandkids we were allowed to love. That trip was the application of stitches that started to sew back together my shattered heart. When I got home, my husband was gazing into the backyard and didn’t know I was there. When he realized I was standing behind him, he turned to me and said “I think we should sell the house.” I asked why before considering what he’d said, and he answered with “my Poppy heart is lonely and I want to love our grandkids.” I said yes to selling without hesitation.

After the decision was made, we spent the next seven weeks getting ready to list the house. Cleaning, purging, updating smaller things like doorknobs, hinges, painting, and replaced the roof. Busy times. Very busy times.

We listed our house on August 3rd, had a full price offer within 24 hours and closed on August 30th. We packed up a large POD, a storage unit, and headed north, to Boston. Again… Just for a visit, though. I had found a smaller house on a quick weekend trip back to Charleston, but our close on that property wasn’t until Sept. 28th. We took our time driving to New England, stopping often to enjoy the beauty of the Shenandoah Valley, the Pocono Mountains, and the changing colors of fall in New England.

We had been in New Hampshire about 7 days when my beloved mother-in-love tripped over a threshold and fell. She broke her femur and I am so glad my husband and I were there when it happened. I called 911 and by the time my husband came down to the garage, we could hear the sirens. Off she went to Manchester, later to have surgery and go to rehab. She did well and went home after we left.

I write all this to let you all know that life happens. Sometimes we determine our own course, at other times we are pushed along the road of life, even if we don’t want to make the drive. Since moving into what should have been our last home, we have sold that home, purged again, driven thousands of miles and settled in New England. My husband’s stroke in October of 2019 has been the determining factor in all decisions made since, and we are both exhausted by life now. Yet it seems there is more to do…

Not being able to see my husband in hospice is slowly killing me, and he is incredibly lonely. How could he not be? I’ve been trying to make sense of the non-visitation rules, but I can’t. I’ve been trying to keep myself from falling apart, I fail. What I can do is remember that my husband and I rebuilt the foundation of our marriage on the Rock that is Christ, we put ourselves and our marriage first in a non selfish way and that we choose love.

This part of my life hurts. There are no words out there to describe how hard it is to watch your spouse die. Now I can’t even do that. I call every day to check on him, but not being able to hold his hand, kiss his face or just sit quietly with him is beyond comprehension. He’s dying. Alone. Physically. My husband never walked away from his faith like I did, and the promises we depend on to keep us strong are just that… strong promises. We share an unbreakable bond, and that bond is what will keep me going after he’s gone.

Darkness comes. Often. More often than I would like. I spend my days praying for the man I love more than my own life. I pray that the peace and rest he so richly deserves finds him. And finds him soon. I pray that I will be strong enough to let myself fall apart and just be. I pray that the broken hearts that have already shattered because of my husband’s stroke be healed with love, and time, and grace.

Thank you for reading this, and please know that there is a day, somewhere down the road, that light will shine upon you again. On me. On my family. And friends. The storms don’t last forever… right? They just feel like they do…

Photo by Barb Enos

A Little Heavy…

I don’t normally share about my faith. Today I was reminded why that is, and why I am so guarded.

Shattering hurt comes to all of us, and being able to admit that is one thing, sharing it publicly? A completely different experience altogether. I fully admit that I have hurt people, both with intent and without. Seeking forgiveness for my actions seems elementary, but it’s not. Forgiveness of self is never easy, but it is possible. Asking others to forgive me isn’t easy, but then again, nothing worth having should come easy. I want to be able to appreciate someone else’s forgiveness, not take it for granted.

I started a five day study today on forgiving what we can’t forget, and I see so much of my brokenness in the first day of reading, I don’t think I want to keep going. I will. I know the best things in my life have always been born out of great anguish and tremendous struggle.

Whether you believe in God or not doesn’t mean you can’t forgive. Forgiveness is a human moral, not a religious one. Did your husband cheat on you? Did your adult child throw you away? Did someone steal something from you? No matter the wrong committed, you can find the strength to forgive. Forgiveness of others and of self make the weight of being broken a little lighter. At least for me.

Today is day 7 of not being able to see my husband and the first day I didn’t wake up crying. I know I’ll cry somewhere along the way today, but I’m thankful my eyes stayed dry this morning. Not seeing him makes me angry. And sad. And confused. All things that I need to forgive. Daily.

I’ve been told many times over that I’m “too” forgiving, and all that statement says to me is that the person(s) making it are hurting so much, they’re blind to their own pain. I never want to be so blind to my hurt that I can’t, or won’t, learn from it. Life lessons are just that… life lessons. I may not have been the best student in school, but I fully intend to learn the lessons this life teaches me.

I’m very thankful for all of the support shown to my husband and me throughout this most difficult journey and want you all to know that. I know I draw into myself. A lot. Sometimes the pain shatters me so much, I can’t see past it. Sometimes the pain is so hot, I feel like I am dying in the fires of hell. It’s after the burning I find that I am being forged like iron, the forging gets me ready for the next round of pain.

If you’ve read this far, thank you. I know this post is a little long. It’s more personal than most, but my heart cries out to share this journey from time to time. Today seemed a good day to share. I am still hurting more than ever, but I see a bit of light through the cracks in my heart today and I can only hope that my words encourage someone else to forgive that which can’t be forgotten…

(I do not own this meme)

Affliction

I’ve spent the morning talking (via text) to a friend in Mumbai, cleaning out the dishtowel/pot holder drawer, the tea cabinet and did laundry. I made my bed and swept the kitchen floor. At this time of day, since September 14th, I’ve been at hospice, holding my husband’s hand, singing to him, telling him I love him. Now all of that is gone again and I have to find a “new” routine to be able to make it through however long this lock-down lasts.


I normally can find solid reasons why things happen, and if not, I can at least try to make minimal sense of a situation. Last lock-down, I had Morgan (my dog) to focus on. He was my reason to get out of bed and try to have a life. Morgan died in July… I miss my dog so damned much, and I know he is better off. I am not.


I miss my husband and there seems to be no one that can tell me how I am more of a threat to him than the people that work at hospice. Minimizing traffic in and out of the buildings is the only answer I got yesterday after seeking out someone to answer my questions. I get the thought behind that, but damn, the patients in hospice are already at the end of their lives. Our people are dying alone, again. I wear a mask, I limit my socializing, I try and stay safe and be cautious. It seems beyond cruel to eradicate the human touch of love. I know he’s well taken care of by the staff, but they don’t know him like I do. I need his touch as much as he needs mine, maybe even more. None of that seems to matter…


I can’t just unlove him. I can’t see past my shattered heart. I can’t unthink about him, or unfeel his touch. The extended length of time since his stroke has changed me forever and some of those changes I don’t like. Some I do. I am less trusting. I have zero tolerance for other people’s opinions about my decisions. I have walls built around me that only very few people are allowed to peek over.
When I cry, which is at least 90% of the time right now, it’s ugly crying. That I’ve been through three boxes of tissue since Wednesday afternoon should tell you something. I had a peaceful day with my beloved sister-in-love yesterday and she knows all too well what pain can do to the spirit. I cried a lot with her yesterday, and she understands. I understand her. Thank you, A.E….


When life knocks you down, sometimes it’s just too damn hard to get up right away. Sometimes the only way to get up is to let your feelings be, and accept the refining of the silver in your life. “Behold, I have refined thee, but not with silver; I have chosen thee in the furnace of affliction.” Isaiah 48:10. The furnace of affliction… whether a believer, an atheist, a christian, a person without faith tenets, we all face affliction. Sometimes the white hot heat of life is the furnace of affliction. Sometimes we open the door to the heat without even knowing it. Sometimes the heat comes from a back draft. The furnace of affliction with its overwhelming heat is a brutal place to be, but it’s not as scary as we think it is. I am hopeful that as the fires of affliction burn all around and through me, I am able to stand. And survive.

I’m not strong, I’m broken. I’m not happy, I’m sad. I’m not sharing light, I’m stuck in darkness. I know this may seem sad to those of you who see me as encouraging, it is sad. I feel tremendous guilt at not being there for my husband, though it is in NO way my fault. The guilt comes on like a tsunami, crashing over me. Again and again. The force of the guilt is like the water, relentless. Ebb and flow. Crashing, receding and crashing again. Guilt is not what I should feel, this I fully realize. Guilt sucks. I am not the only person who is being kept away from a loved one that’s dying, and I can almost guarantee you, others feel like I do. Many, many others.

Someday, Coronavirus will either burn itself out, or become a world-wide, common virus like the Chickenpox or the common cold. As long as people deny the science behind how to minimize it, I will be in this position. Broken. Being denied the touch of my husband’s hand. Sad. I’ve said it before, public health is a public responsibility, so please, be responsible. PLEASE!!! We, as humans, are not created to be alone, to be divided. We should be able to depend on one another in our times of greatest sorrow, and it’s very sad that we can’t. It’s very personal to me now, knowing that people say they care and then demonstrating just how little they actually do. Wear a mask, stop bitching about it! It’s part of being responsible. It’s simple, too. Not complicated at all. Try it, please…

In closing, I’m going to try and get out of the house this afternoon and maybe I’ll find a smile or two. I need to feel the sun on my face, listen to the birds and know that the darkness I am encompassed by is temporary. Even though it doesn’t seem so…

Be kind, stay safe and know that I appreciate you all!

Photo by Barb Enos.

Again… and Again… and Again…

Hi all…

Today is the first day of a reoccurring nightmare that seems to happen again… and again… and again. I feel like I am caught in a downward spiral that has no bottom. No end. No light. I keep thinking that eventually I will be able to find my way back to my own heart, but I am still lost. Lost. Lost in the pain of again…

Yesterday, November 18, 2020 was the last day I was allowed to hold my husband’s hand, stroke his face, kiss his forehead. It was the last day his oldest brother was allowed to visit him. Visitation at the VA hospice unit where my husband is has been suspended. Again. I was told I would be able to stay with him and not allowed to leave the building if the VA decided to stop visitation, but that information was false. I would stay in his room, not leaving at all until he passes away, therefore not exposing myself to Coronavirus. But no, I can only see him when he’s down to “hours” left to live. Hours. By that point I assume he won’t know who I am, he won’t know I’m there and he will die thinking he was alone. The suspension of visitation defies logic, but then again, I understand it. If I, as the spouse of a dying veteran, am prohibited from visiting because of potential exposure, what about the staff? Don’t they leave the building? Go home? Shop for groceries? Who are they potentially exposed to when not at work? Can’t they carry the virus and not know it? All the same things that happen to the families of the hospice patients can happen to a staff person, right? We’re all human and have to live, but denying hospice patients human contact from their loved ones seems beyond cruel. My husband cries, a lot. When asked what I think about how to help him find a way to keep him from being so sad, I always told them, let him see his family more. He’s lonely. He’s dying from loneliness. Literally.

As I sit here at my computer, the tears don’t stop. I continue to cry without even knowing it now. I am beyond crushed in spirit, my heart completely shattered into nothingness. I know I shouldn’t feel guilt, but I do. I should be there right now, holding his hand, playing music for him, wiping his face to keep his beard and mustache free from being sticky with food, or nasal discharge. I would wash his face every day and then comb out whatever debris was stuck to his facial hair. Seems like something I shouldn’t worry about, right? I do. He deserves to be kept clean, and he is, but this kind of thing is not something the staff of hospice should have to do. Especially when I want to do it for him. Who will sit and pray with him? Who will whisper that it’s okay to go be with his Daddy, or to hug my Daddy around the neck when he seems him again. The staff of hospice don’t know the small intimacies shared between my husband and me on a daily basis. The songs I would play for him have meaning to us both, the playlists are personal. Who will turn the TV off or on? Make sure that channel 64 is on? Who will turn the volume down when it’s too loud?

I just can’t seem to make any sense of the why behind the decisions being made anymore. Why is it okay to make the sick and elderly die alone? Why is it okay that lack of leadership and lack of personal responsibility determine that my husband be dying from loneliness? I have tried for many months to figure out how human kind can care so little for their fellow human beings, and I am no closer to an answer today than I was when I was banned from seeing him back in March. Should I be grateful that I got to see him from August 30 thru yesterday? I am, but not in the way people seem to think I should be. I only got to see him because I pushed for him to be admitted to the hospital from the long term care home he was in. By the time I got to see him, he and the Grim Reaper were dance partners. Had I not insisted he be admitted to the hospital, I never would have known how sick he was. How much the forced isolation took from him. From all of us.

I am grateful that I am part of this group of people I call family. It breaks my heart to know that so many of us will soon lose the husband, father, Poppy, brother, father-in-love, uncle, friend and man that we all love. Some of us have had the chance to say goodbye to him, and some haven’t. I’ve said I love you to him so many times over throughout our lives together, I know he knows I love him. To know that our children have had to say goodbye to their beloved Daddy is beyond painful, but knowing that they have to explain to their children that Poppy is gone, is excruciating. Our three year old grandson is his Poppy’s heart, they all are, but the three year old? How do you tell him his hero is gone? No child should have to know that kind of pain…

I keep telling myself that I will be okay again, but I don’t really believe that anymore. I know we shouldn’t ask the age old question “What else can happen?,” but I do. I ask that because I truly believe there is no end to the suffering I am experiencing. At one point I thought I would be able to salvage some of myself and start over, now I’m so completely broken, there is nothing left to salvage. I am melancholy. I am bereft. I am floundering in a world that holds no joy for me right now. Joy. Something I have firmly believed in. Until yesterday. I believe in God, but do not consider myself a christian, just a believer. Christianity is not kind, I am. Or at least I try to be. Christianity is full of hateful people that think I am not child of the God because I don’t think like they do. I pray. Constantly. I believe that prayer is helpful, but prayer backed up with condemnation is not. I believe that Jesus loves me as I am, and if that’s not enough to make me worthy, it’s okay. My husband believes as well, and I will continue to pray for him. Always.

Again… and again… and again… I just keep thinking that what is happening to us is cruel and unnecessary. I know none of us get out of this life alive, but none of us should have die alone… People need their loved ones and I need to see my husband. Again… and again… and again…

Stay safe, be kind and have a Happy Thanksgiving… Until next time…

Photo by Barb Enos

Getting Lost is Too Easy…

Hi all. I hope this entry finds you all well and staying safe. With the holidays right around the corner and the virus raging out of control, I know times seem dark. They are dark. And it’s easy getting lost in the darkness. At least for me it is…

My husband is still hanging on to life, but declining steadily at the same time. It’s been almost two months since he went to hospice care and I feel like it’s been so much longer. So. Much. Longer. I am lost in the depths of a sinking sadness and it just doesn’t end. There is no way to say this. It just is. I pray constantly for his pain and suffering to end, knowing that mine will be made greater when he passes. It’s okay. I know I will heal as best I can and I hope to get lost in the healing process. I hope that makes sense… I am so lost in the grieving process already, and have been for over a year now, so the healing process will be a welcomed change.

Today my husband asked me not to cry, but I don’t know how to stop. It’s so easy to get lost in the sorrow of the journey we’re on. Finding reasons to be happy still come, just not as frequently as they are welcome. I did have a reason to be happy for a little while today when talking to the other Gma of our oldest grandson… He got a new puppy on Monday of this week and our boy named him Moe. I learned that our grandson has shown great responsibility in caring for Moe already, and that Moe brings healing to his heart. This is the same grandson we lost to the forced estrangement more than 2.5 years ago, so knowing that he is happy means everything to me. I am so grateful for the small things in my life that bring me moments of happiness.

Being lost in the love of my family is easy, and I appreciate them so much. I am so wounded and not fun to be around, and the people of my family are loving me through the pain and the loss to come. I won’t be the only one to lose my husband, and I know that all of us will be left a little emptier after he’s gone. I think sometimes I hurt so much that I close myself off, and they know this. So do my trusted friends. I’d like to believe that the people I love aren’t hurting, but they are and I can’t fix that. I wish I could…

Getting lost to the sadness is one thing, getting lost in the anger that rears its ugly head is another. I have been angry a lot over the past 13 months, but lately that anger seems to sink its teeth deeper and deeper into my soul. I don’t care if people agree me when it comes to the decisions I’ve been making. What other people think of me is none of my business. The climate in which we all live in the U.S. is toxic. It’s also emboldened people to give voice to their opinions about MY decisions. If I want to know what someone thinks about what I’m doing, I’ll ask. The saying about walking a mile in someone else’s shoes… Yeah. I get lost in that anger and I can’t shake it off as easily as I used to. I know I shouldn’t care, and most of the time I don’t, but when closer then most people to me say shit to me about what they “would do differently” I get pissed. When it’s your turn to do things differently, go ahead. I sincerely hope you never have to do things differently… I hope you never have to sit by a loved one’s bedside and watch as the Grim Reaper slowly takes his sweet time torturing them.

I wish I could be more positive and encourage you all like I used to. I hope to get back to that person again someday. I know I’ll never be the same again, but I also know that I will be okay and that my story will be an encouragement to someone else someday. When people tell me how strong I am, I tell them that I’m not strong, I’m broken. Being broken is okay, and so is being strong. I’m not strong enough to be anything but broken right now and it’s as it should be. I am not afraid to ask for help, I am not afraid to cry and I am not afraid of what is coming. There is a strange sense of strength in the brokenness I feel, and someday I will try my best to put the pieces back together again. Until then, I’ll try really hard to not get lost in the pain…

Stay safe, be kind and know that I appreciate you all making this journey with me. Until next time…

First snow of 2020. Photo by Barb Enos

It’s been a while…

It’s been a while since I’ve written, and that extends across all the ways I write. My journal, my blog, letters, my book. I have been so caught up in surviving the visits to hospice every day that I haven’t taken much time for myself lately. I did, however, take time today to walk the Cape Cod Canal this afternoon after visiting with my husband, and it was well worth the drive. I’d almost forgotten about the beauty my home state offers, even with the winter approaching…

It’s been a while since I’ve felt good, both mentally and physically. I’d gotten used to walking the campus of the VA Hospital where my husband is every day after our visit, and then that freak snow storm hit the area on October 30th. A dusting was predicted. We got 6 inches here in the greater Boston area! I drove in the snow for the first time in many years and did fine. Just kept it slow. I also drove to NH to spend the weekend with family and it was nice. Even nicer? I didn’t have to drive to and from hospice for two days as my brother-in-love did all the driving. Such a relief…

It’s been a while since I’ve felt whole. A long while. We passed the one year mark for my husband’s stroke on October 30th. He had his craniotomy on Nov. 2, 2019 and it’s been more than a year since he looked like someone beat the crap out of him the day after the surgery. In the long year since he had fought so hard to recover and he did so well. Until Covid came. The forced isolation took its toll on him physically, mentally and emotionally. Spiritually he has become stronger, and the closer he gets to death, the stronger his faith becomes. I wish I could say the same. I’m broken, not strong, and when I tell people that, they’re usually surprised.

Have you ever watched someone you love more than your own life die a long, slow, agonizing death? I hope not, but if you have, than you know what I feel like. I feel like this: When our daughter estranged herself from the family and forbid us to see our grandson, I was shattered, As time went on, I began to pick up the larger pieces of my life and tried to put them back together. Light would shine through the cracks and while the light refraction’s looked different, there was still beauty. Then came the stroke, 18 months later. I was shattered into smaller pieces, and again learned to put the small pieces back together. Light again shone through the smaller pieces and larger cracks. Then came selling our home. Moving. Being banned from visiting my husband. Discharging and moving. Again. Still no visitation. Almost seven months without being allowed to touch my husband, hug him or even hold his hand. In that 7 months, the pieces of glass kept breaking. They turned to dust. Dust that cannot be put back together again. My spirit became dust. Glass dust is beautiful in its own right, but it’s impossible to keep together. I also feel like a jigsaw puzzle. Every day that I get to see my husband, for two hours, I feel like I leave another piece of the puzzle behind me when I have to leave him. I don’t even bother to look for the missing pieces. I will. Later. I AM determined to be okay. I am determined to face the storms I’m in with every broken piece of me. And, when I get to the other side of the storm on the horizon, when I get my feet under me and my mind clears from the fog of grieving, I will begin to look for the lost pieces of myself. It’s the getting from here to there that is taking a while…

I do want you all to know that I’ll continue to try to do some self-care, hence the walking of the canal today. I dream of the day I can travel to SC to see my beloved daughter and her family. I miss my grands so very much. I dream of going to Northern California to visit family and heal. I long to walk the beaches of Northeastern Florida and spend time with family there. I know that these desires will have to wait until it’s safe to travel again, but these are some of the things I will do when I can. Until then I will see my husband every time I am able and try to remember to be grateful for the time we have. He is declining every day and I pray for him to find relief from the terrible pain he lives with 24/7/365 now. He is heavily medicated for pain and anxiety, but the pain always seems to find a way to break through the morphine and fentanyl.

In closing, please remember to be kind to one another and try not to take your life for granted. Hug someone you love, pay it forward and smile. The trials of this life may seem insurmountable, but with support and love, we can all find moments of joy. Until next time, I am always thankful for you…

Cape Cod Canal Photo by Barb Enos

Dancin’…

Good morning, all, I hope this entry finds you all well and staying as safe as possible. With Coronavirus surging again, the future looks more bleak every day. That’s what got me thinking about dancin’…

Dancin’ with the devil… Dancin’ on the ceiling… Dancin’ in the dark… Dancin’ in the Rain…

Take your pick, the field is wide open. Right now I am basically dancin’ with the devil. The devil of depression, the devil of despair, the devil of loneliness. Too many devils to name them all. What keeps me going is knowing that I can and do dance with my friends, my family and with my faith. I don’t write much about how I believe, but I do. And that belief helps me beat back the devils I dance with on a daily basis. I’m a believer that doesn’t identify with mainstream Christianity. I know that’s not a popular thing to say, but it’s the truth. I see things from a more open-minded view point, and how I pray, practice my faith and worship, are very personal to me. I don’t share much more than that.

Dancin’ is something that should make us feel good, the more movement we get in in a day helps keep our spirits up. I love all different kinds of music and sometimes I just want to find that rhythm that makes me move without even thinking about it. I know that when people drive by me and I’m dancin’ in the car, it always makes them smile, and sometimes laugh at me when they pass by. It’s okay, I laugh at myself, too. I believe in simple joy, and knowing that even for a few seconds that someone finds something to smile about in this dark and somewhat oppressive world because some fool woman is dancin’ in her car brings me joy. Simple.

Do you ever think about how crappy this world would be without music? Without dancin’? It would be a place that I would not want to be, music sustains me. Especially in this dark, dreary and uncaring world. I would rather listen to music than watch TV, and dancin’ is just a way to bring music to life. My husband and I would dance in the kitchen when he was able to. I would dance in the kitchen with my children held in my arms when they were young. I love to hold my grand-babies and dance with them when I am able. Being silly and dancin’ with my beloved Boston Terrier, Morgan was something I would do often. I miss dancin’ with my dog, he crossed the Rainbow Bridge in July of this year.

Dancin’ is a simple way of relieving stress and who cares if you look foolish or not? I don’t worry anymore that people will think I’m a freak for expressing myself. I don’t care anymore what other people, especially those I don’t know, think of me. I am broken and hurting and trying to keep my head above water these days, so what someone else thinks doesn’t matter. Stress will eat us all alive if we let it and adding to that because of someone else’s opinion? I don’t think so…

I just wanted to say a quick hello and am getting ready to head to hospice to visit my husband. Please know that I appreciate all of you and the time you take out of your busy life to read my blog. Have a joy filled day and remember to dance whenever you want! Life is too short not to!

Photo by Barb Enos

When I…

Hello all, I hope that this post finds you all well and staying safe. Thanks for checking out today’s post!

When I think about what is happening in my life and the lives of those I love, I frequently become overwhelmed. Writing helps me make sense out of things that seem nonsensical. Most days during this particular time frame are pretty much nonsensical to me, and I literally end up overthinking every thing. It’s been a tough weekend for me, as are most weekends right now, and I would give almost anything to be able to change things. I’d change things not only for myself, but for the people I love that are dealing with losses and trials of their own. While driving home from visiting my husband in hospice today I realized, for the umpteenth time, just how much being an empathetic person takes out of me. Today, for an hour or two, I would’ve traded myself in for a model that couldn’t feel as much. I’m over that now, but those feelings gave way to so much more than myself. It gets exhausting carrying the weight of so much emotion, and if people like me aren’t careful, we lose ourselves to everyone and everything around us.

When I think about this last week I have to say that it was by far one of the hardest of my life. I never thought that saying goodbye to my son-in-love at the airport would open up the flood gates to so much emotion. I spent the week barely existing, barely functioning. I feel a little better today, but the bruises on my heart will take some time to heal. My heart remains broken, but my mind is a little less chaotic than it was 7 days ago. My youngest daughter and her extended family received some devastating news that set all of us reeling in disbelief and grief. I have spent the last few days praying for peace and healing, for comfort. Healing in this situation will be a very long time in coming, and the acceptance of such news as was received will not happen overnight. So much pain…

When I think about the loss I am facing with my husband, I am so conflicted. So very conflicted. I love the man I have been married to for the past 38+ years with my whole being, yet I am agonized by watching him suffer so. The transition to death is not anything like I think it should be, it’s a very personal and trying journey. The ups and downs of the hospice journey have been confusing, I get angry, I hurt beyond belief, and yet when I don’t receive that dreaded phone call, I am grateful. And I am sad for my husband. My suffering pales in comparison to his, there is no way I can put into words how much watching him writhe in pain hurts me. For him. If I could take it all onto myself, I would. Every damn day. The miracle in all of this will be his freedom from pain, no matter what that freedom looks like.

When I think about the future and what it looks like, I would rather run backwards than look forward. I know I have no choice but to look ahead, as we all know we can’t change the past. Looking forward right now is scary, I know the future holds days of unimaginable grief, struggle and pain. Beyond those things is where I need to focus. Beyond the grief will be healing. Beyond the struggle will be an easing. And beyond the pain will be a new journey that I pray will be honoring to my husband, challenging enough to keep me learning and a new found strength. I already know that I will not be traveling alone, I am surrounded by love.

As always, I appreciate any and all who read this and hope that you find something worth holding on to in my words. You are not alone in your struggles, you matter, and you are loved. Stay safe, be kind and remember to turn your face toward the sun and appreciate its light. And warmth…

Photo by Barb Enos

Thursday Morning Thoughts…

Good Morning. Welcome to Thursday! This week has gone by pretty quickly, but being a day behind until this morning helped speed things up. I’m caught up with the rest of my life now and having a few laughs at myself. I’m glad I can laugh still, especially as my life is falling apart. I’m holding on by the skin of my teeth, still looking ahead to the sun rising again and bringing me some peace. And moments of joy. Even stolen moments of joy.

This morning my husband is first and foremost on my mind. As always. I find myself cherishing each day, each moment with him just a little more than the day before. As the world implodes all around us, I am becoming more and more insular within. His days are numbered, but how many of these numbered days do we have left? Yesterday he was pretty zombified by the morphine he’s now receiving regularly, and while the situation continues to crush my heart, I am at peace. As is he. To be able to spend time with him in the midst of the pandemic is a gift, and I am determined to make the most of our time together. Watching someone you love transitioning to death is not easy, not at all. It’s like a double edged sword. On the one side we want more time, on the other side we want less suffering. I can’t imagine my life without him, but I can’t imagine him in constant pain and suffering. A complex oxymoron…

It’s a beautiful fall day here in New England and the sun is shining brightly in Boston. While the country I love races towards self-annihilation, I find myself stuck between wanting to scream and wanting to hide. I want to scream because people of color are treated as less than by a broken justice system. I want to hide because the noise of turmoil overwhelms me. Especially now. I want to stand up and fight for what matters to me, and not being able to is a tough pill to swallow. Then I think, “Hey! You are fighting for that which matters most! Your husband.” I am learning a little more each day how to grant myself grace. And forgiveness. And I ask for forgiveness from my friends. Forgive me for not being able to do more, but I know you all understand why I can’t. Thank you.

As you go about your day today, remember to be kind to those you meet. You never know what someone is going through. Kindness matters, and these days it matters more than ever. With so much hatred and discord being spread by people that are in positions of great power, it’s up to the rest of us to hold onto kindness and share it. Smile at a stranger, even though they might not see it behind your mask. They’ll see it in your eyes. Let that car trying to turn left into that parking lot go ahead of you, just because you can. Take a walk and just listen to the world around you. Sit in the sun. Be kind to yourself. And others. We all need more kindness and you could change a life with a simple act of kindness.

My Thursday thoughts could go on for quite a while, but I’m ending here. I’m going to take that very walk I encouraged you to do, and listen to the sounds of the city I love. Traffic, sirens and dogs barking are a given, but birdsong, children laughing and quiet are not. These are the things I will be listening for…

Until next time, be well and stay safe!

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Thank You…

Hi everyone. Another day is upon us all and I want to share my heartfelt thanks to all of my readers, followers and to the world beyond. I don’t have the most successful blog out there, but it’s okay. I want my blog to be something I look forward to writing, I need that more than ever right now. I wish I had the desire to write every day like I did in the beginning, but my life has changed so much since then that I’ve had to completely shift my focus.

Thank you. Those two words never seem enough to say, though most times they’re all we have. There are so many people I wish I could say thank you to in person… I would love to say thank you to the Polytrauma Unit staff in Richmond, Virginia at the Hunter Holmes McGuire VA Medical Center. The amount of love, compassion, patience and expertise poured into both my husband and myself while we were there goes way above and beyond “work.” We were cared for like we were family and the time spent there will forever be a cherished memory. As human beings, we’re not meant to spend our lives alone, and we were not alone there. Though Covid-19 kept me from physically being with my husband during his last three months there, I knew that I was there in spirit. I was included in his life daily and saying thank you just doesn’t seem enough.

Thank you. Those two words have been said more in my heart and mind than anyone could ever know. I have known more pain in the past 2.5 years because of other people’s actions, and if I could, I would say thank you to those very people that hurt us. I know that sounds weird, but the pain inflicted on me and my husband served a purpose that I’m sure was unintended. The most painful thing I’d ever experienced was nothing more than the pouring of a foundation on which to stand against that which we now face. The fact remains that we still feel the pain of estrangement, but the pain of watching the man I love slip away from this earthly life far outweighs the pain of being abandoned by our daughter. We can’t change the past, but we can learn from it and incorporate lessons learned into our present and future.

Thank you. I am grateful to God that I have been blessed with the ability to forgive others. And to forgive myself. Forgiveness doesn’t mean that we forget the wrongs committed against us, it means that we accept what is and that we choose to lay down the weapons of anger, resentment and confusion. I have been able to walk through the angst of what life throws at me because I truly believe forgiveness matters. I’ve had to forgive myself so many times throughout my life for things I’ve said and done, and I know I will continue to do so. Forgiveness towards others is easier for me than self forgiveness, but I still believe in it. When someone wrongs you and you hold onto that bitterness and anger, it hurts you, not them. Forgiving isn’t forgetting, not at all. Forgiveness can help you find peace within if you let it.

Thank you. A simple phrase that packs such a punch. Being thankful and having an attitude of gratitude, even in your darkest times, can bring light to your heart. And life. Am I sad most days right now? Sure I am. I also know I will be for some time to come, but that in time, I’ll be okay again. I’ll be different, I’ll change over the course of time but I’ll try to remain positively changed. It’s impossible to not be changed by the pains life gives us. In the long run, over the course of our lives, pain defines and re-defines who we are and who we will become. I accept this. I try hard to learn from the situations that cause me pain, and since life is nothing more than a series of lessons, I know that what I am learning will have great impact on me. I don’t seek pain or painful situations, but I don’t hide either.

Thank you… for reading this. For sharing my journey. For lifting my husband and I in your prayers. I hope that no matter who you are and what you’re facing that you’ll find encouragement through my journey. The only thing that will save us all is all of us, humankind can save humankind, and I am ever hopeful that we will do so…

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